PROJECT 01 · GENERATIVE AI VIDEO · 2026

Somali Dementia Awareness

A Somali language dementia awareness film created with generative AI, together with the governance system used to decide whether it is safe and appropriate for public use. The prototype exists, but it has not been approved for use as public health information.

STAGE

A prototype has been produced and the governance system has been built. No assurance gate is currently recorded as effective. The material is not approved for use as public health information, has not been deployed and has not been evaluated.

USE STATUS

Not approved for use as public health information. Approval depends on eight assurance gates and resolution of 12 blocking confirmations; 25 local governance confirmations are currently outstanding in total.

RELATIONSHIP

Produced independently by EarlyStability. The project has been discussed with NHS stakeholders, with further discussion proposed. No commissioning, endorsement, adoption, partnership or approval exists. No governance role has been appointed.

SETTING

Public dementia awareness for a Somali speaking audience in Birmingham and Solihull

GOVERNANCE BASELINE

Governance baseline ES-GOV-DEM-001 version 0.3, supported by operational workbook ES-GOV-DEM-002.

RECORD UPDATED

27 August 2026

GATE-1

GOVERNANCE READINESS

CRITERIA NOT MET

GATE-2

HEALTH CONTENT ACCURACY

CRITERIA NOT MET

GATE-3

SOMALI LANGUAGE MEANING

CRITERIA NOT MET

GATE-4

CONTENT CONSISTENCY

CRITERIA NOT MET

GATE-5

AUDIENCE SUITABILITY

CRITERIA NOT MET

GATE-6

FINAL ASSURANCE

CRITERIA NOT MET

GATE-7

VERSION CONTROL

CRITERIA NOT MET

GATE-8

CLOSURE AND HANDOVER

CRITERIA NOT MET

0 OF 8 ASSURANCE GATES ARE CURRENTLY RECORDED AS EFFECTIVE

0 OF 43 REQUIRED GOVERNANCE REVIEWS ARE CURRENTLY RECORDED AS SATISFIED

25 LOCAL GOVERNANCE QUESTIONS STILL NEED CONFIRMATION. 12 MUST BE RESOLVED BEFORE APPROVAL FOR USE.

How to read this record

Some project records use the word "publication". Here, that means formal clearance for material to be used as public health information with its intended audience. It does not mean that everything shown on this page has been approved. Materials shown here may simply be evidence of how the project is being developed, tested and governed.

INTERVENTION

What we are building

We are developing short Somali language films that explain dementia to families and carers. They are public awareness materials designed to help people understand dementia before a clinical conversation is needed. They are not diagnosis, treatment or clinical advice.

WHAT IT DOES

Creates short Somali language public awareness films about dementia.

WHO IT IS FOR

Somali speaking families and carers, and organisations that support or reach them.

WHERE IT SITS

Public awareness. It is not part of diagnosis, treatment or clinical care.

WHAT THE AI SYSTEM DOES

Uses generative AI to create narration and visual sequences from a script.

WHAT PEOPLE ARE RESPONSIBLE FOR

People write the script and review the health information, Somali language meaning, cultural safety and accessibility. A person must also decide whether the material can be used. Final approval is kept separate from content production and governance advice.

WHAT IT DOES NOT DO

It does not diagnose anyone, give clinical advice, depict real individuals, replace a conversation with a healthcare professional, use NHS branding or imply NHS endorsement.

CONTROL

How the project is controlled

The project uses a written governance system and an operational workbook to track risks, possible failures, controls, review questions, decisions and what should happen if something goes wrong. If a required record is missing, the system does not treat that as a successful result.

Before this prototype could be approved for public use, it must meet eight assurance requirements. These checks cover how the project is governed, whether the health information is accurate, whether the Somali meaning is correct, whether the narration, visuals and captions agree, whether the material is suitable for its audience, and whether the final version is properly approved and controlled. None of the eight requirements is currently recorded as met.

See the detailed assurance checks

GATE-1: GOVERNANCE READINESS

Checks that the project's governance basis is in place before data is processed or content is produced.

GATE-2: CONTENT ACCURACY

Checks that health information is accurate before it becomes part of the film.

GATE-3: LANGUAGE MEANING

Checks that the Somali version keeps the intended meaning.

GATE-4: CONTENT INTEGRITY

Checks that the visuals, narration and captions communicate the same meaning and do not create a false impression of institutional identity.

GATE-5: AUDIENCE FITNESS

Checks whether the intended audience can understand and safely use the material, including whether it is culturally appropriate.

GATE-6: FINAL ASSURANCE

Checks that all required safety and governance checks are complete, and that the person responsible for the final decision decides whether the material can be used.

GATE-7: PUBLICATION INTEGRITY

Checks that the version actually used is the approved version, in the intended place and with the required information.

GATE-8: CLOSURE AND HANDOVER

Checks that responsibility for any published material remains clear if the project ends or is handed over.

The governance system currently records 23 risks, 79 documented ways the project could fail, 59 controls, 43 required review questions across 12 areas, and 24 defined governance roles. None of those 24 roles is currently appointed.

The AI Governance and Assurance Lead does not hold Final Publication Authority.

Source: ES-GOV-DEM-002

Project involvement is not a role appointment.

Source: ES-GOV-DEM-002

Five plans are in place for situations where something goes wrong or the project needs to stop. They cover removing and correcting content, changing the AI supplier or model, dealing with account or publishing access problems, responding to misinformation that continues to circulate, and handling unexpected AI behaviour.

The governance framework contains 25 local questions that still need confirmation before this material could move towards approved use. Twelve of those are blocking requirements. They must be resolved before the material could be approved for use. All 25 are currently outstanding.

An internal review of the project's governance documents identified five inconsistencies. The detailed issues are recorded internally and all five remain unresolved.

Testing the system

TEST DESIGN · DESIGNED

A manual assurance test pack was designed to try to break the governance system rather than to confirm that it works. It contains 60 tests across five types.

POSITIVE

Checks that a legitimate route can complete correctly.

FAILURE

Checks that a defect is caught.

BYPASS

Checks that a shortcut around a control is blocked.

RECOVERY

Checks that the system can return to a safe state.

EXTREME

Checks behaviour under rare or hostile conditions.

For failure, bypass and extreme tests, a test passes when the unsafe route is correctly blocked or escalated.

TEST EXECUTION · CURRENT

Two of the sixty tests have been executed. Both passed. Fifty-eight have not been run.

Passing these tests does not mean the project has NHS approval, clinical safety approval, or independent assurance.

Selected artefact

EXHIBIT · PROTOTYPE · GENERATIVE AI VIDEO · 42 SECONDS · 2026

This prototype is shown as part of the project development record. It has not been approved for use as public health information, deployed, or evaluated.

The Somali narration has been checked against the English captions by one reviewer. It has not yet received wider language review.

Portrait film poster showing a gradient background with overlaid English text captions reading: Dementia affects the brain

PROTOTYPE · AI-GENERATED · NOT APPROVED FOR USE · NOT HEALTH ADVICE

Transcript · English

English

Dementia affects the brain. It can cause memory problems, confusion, and difficulty with everyday activities.

Some people think dementia just happens as you get older, but that isn't true. Dementia is different from simply getting old.

If you notice a change in yourself or someone in your family, speak to your GP.

Someone who forgets things does not always have dementia. There can be other causes, and some of them can be treated.

If needed, your GP can refer you to the memory service. Speak to your GP, don't feel embarrassed. Help is available.

The English transcript has not yet been independently checked against the complete delivered film.

WHAT THIS IS

An AI-generated dementia awareness prototype with Somali narration and burned-in English captions.

WHY IT MATTERS

It is the prototype the governance system is intended to assess before any decision about approved use.

WHAT IT DEMONSTRATES

It demonstrates that the project produced a working Somali language video prototype with English captions.

WHAT IT DOES NOT DEMONSTRATE

It does not demonstrate clinical accuracy, audience understanding, NHS approval, clinical safety approval, or suitability for public use.

What has been built

GOVERNANCE

Governance workbook: 11 registers, 8 gates, 59 controls, 79 documented failure modes, 23 risks and 43 required review questions

2026

GOVERNANCE

Governance baseline, version 0.3

2026

GOVERNANCE

Governance consistency check: 5 open inconsistencies

2026

GOVERNANCE

Five response and exit plans

2026

TESTING

Assurance test pack: 60 designed tests across 5 test types

2026

TESTING

Test execution record: 2 tests run

2026

MEDIA

Prototype film: 42 seconds

2026

What is not yet proven

None of the 8 assurance gates is currently recorded as effective.

0 of 43 required governance reviews are currently recorded as satisfied.

58 of the 60 designed assurance tests have not yet been run.

25 local governance confirmations are still outstanding. 12 must be resolved before approved use.

24 governance roles are defined, but none is currently appointed.

This material has not been commissioned, endorsed, adopted or approved by an NHS body.

The film has not yet been tested for understanding with its intended audience. The one defined evaluation measure has no recorded result.

The project currently has no recorded evidence showing that the material changes awareness, help seeking behaviour or how quickly people seek support.

The governance system itself has not been independently assured.

What needs to happen next

Question

Does the assurance system work properly when something goes wrong or someone tries to bypass it?

How we would check

Run the remaining 58 tests in the assurance test pack.

What would count as evidence

A completed test record showing the results, with failures analysed and controls reopened where defects are found.

Question

Can the Somali narration be relied upon?

How we would check

Have a native Somali speaker review the narration against the pronunciation risk register and compare it with the English captions.

What would count as evidence

A verified narration version and a completed comparison with the English captions.

Question

Is the health information accurate, and does it direct people towards the correct help?

How we would check

Have a dementia domain reviewer check the material against the registered evidence sources.

What would count as evidence

A completed review showing the outcome for each health statement.

Question

Which local governance requirements can now be confirmed?

How we would check

Seek written confirmation from the relevant local organisation for each outstanding requirement.

What would count as evidence

A requirement changing from outstanding to confirmed, with the supporting evidence recorded.

Question

Does the intended audience understand the current prototype film?

How we would check

Ask 30 people from the intended audience to watch the prototype and explain what they understood. Recruitment should include people who speak different Somali dialects and language varieties, as well as different age groups, including older adults.

What would count as evidence

Participants consistently understanding the film's main messages, with any differences in interpretation across Somali dialects or language varieties identified and addressed.